Resources

IROC's Community Engagement Workgroup members collaborate on a variety of projects. Our goal is to provide resources that are useful to patients and families facing chronic kidney disease.

If you have a suggestion for a helpful resource, please email us at communityiroc@gmail.com.

Disclaimer of Endorsement: This site includes links to information created by other public and private organizations. These links are provided for the user’s convenience. IROC does not control or guarantee the accuracy, relevance, timeliness, or completeness of this information. The inclusion of these links is not intended to endorse the products or services offered, on these non-IROC sites.

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Make-A-Wish®

Did You Know: Kidney transplant recipients referred between the ages of 2 ½ and 18 years old automatically qualify for a Make-A-Wish® experience?

Families can refer children through their website, or contact your hospital kidney center team for support.

Funding Resources

Download our guide to funding resources for transplant patients. This resource, created by Alicia Moreno and the IROC Community Engagement Workgroup, includes grants, co-pay support, transportation aid, and fundraising platforms to help ease the financial burden of kidney transplants. Whether you're a patient, caregiver, or social worker, this guide can connect you with the help you need.

Mental Health Resources

The CEW is pleased to present three mental health resources specifically designed for individuals with kidney disease. These resources are intended to improve support and overall well-being for our community.

Special thanks to Katie Figueroa (CEW), Dr. Kara West (Children's Hospital of Philadelphia), and Dr. Elizabeth Steinberg Christofferson (Children's Hospital Colorado) for their dedicated efforts and contributions to this project.

Kids In Canoe At Summer Camp

Summer Camps

A list of summer camps especially for children with kidney disease and/or kidney transplants. Most camps are free or very low cost.

 


Scholarships

A list of scholarships especially for people with kidney disease and/or kidney transplants. Scholarships range from educational to general financial support and can be for patients, family members, or medical caregivers.

Student Holding Books And Listening To Music
 
Lacrosse Team Practicing

Kidney Shields / Guards

The following information grew out of our members' question: “Does anyone know of a company that makes comfortable kidney guards?” We were surprised to find that there were so many options, from custom to off-the-shelf.

CEW Educational Materials

IROC Rejection Education Materials

Last Updated: April 2022

The IROC Community Engagement Workgroup (CEW) led the creation of two versions of kidney transplant rejection educational materials: an illustrated comic-like book for kids and a comprehensive packet for adults. These resources are available to all IROC Centers and can be accessed at the links below.

For Kids:

For Adults: