The publication of research is an integral part of our collaborative’s work. See links to our recent IROC publications below to learn more about the work driving innovation in pediatric nephrology.
New! Select publications now include a Research Explained feature — a brief, accessible summary designed to help patients, families, and care teams better understand the research findings and their real-world impact.
“Assessment of Food Insecurity Screening Practices in Pediatric Kidney Transplant Care Across IROC Centers” was published in October 2025 in Pediatric Transplantation.
Lecea, E. G., Winnicki, E., Oates, A., & Brakeman, P. Assessment of Food Insecurity Screening Practices in Pediatric Kidney Transplant Care Across IROC Centers. Pediatric Transplantation 29, no. 8 (2025): e70217, https://doi.org/10.1111/petr.70217.
“Donor specific antibody surveillance among pediatric kidney transplant programs: A report from the improving renal outcome collaborative” was published in March 2023 in Pediatric Transplantation.
Steinbach, E. J., Barletta, G. M., Patel, H. P., Hooper, D. K., Garro, R., & Harshman, L. A. (2023). Donor specific antibody surveillance among pediatric kidney transplant programs: A report from the improving renal outcome collaborative. Pediatric transplantation, e14498. Advance online publication. https://doi.org/10.1111/petr.14498
“COVID-19 in pediatric kidney transplantation: a follow-up report of the Improving Renal Outcomes Collaborative” was published in May 2022 in the Pediatric Nephrology.
Varnell, C., Harshman, L.A., Liu, C. et al. COVID-19 in pediatric kidney transplantation: a follow-up report of the Improving Renal Outcomes Collaborative. Pediatr Nephrol (2022). https://doi.org/10.1007/s00467-022-05570-w
“The learning health system for pediatric nephrology: building better systems to improve health” was published in April 2022 in the Pediatric Nephrology.
Varnell, C.D., Margolis, P., Goebel, J. et al. The learning health system for pediatric nephrology: building better systems to improve health. Pediatr Nephrol (2022). https://doi.org/10.1007/s00467-022-05526-0
“A Medication Adherence Promotion System to Reduce Late Kidney Allograft Rejection: A Quality Improvement Study” was published in August 2021 in the American Journal of Kidney Diseases.
Hooper, D. K., Varnell, C. D., Rich, K., Carle, A., Huber, J., Mostajabi, F., Dahale, D., Pai, A. L. H., Goebel, J., & Modi, A. C. (2022). A medication adherence promotion system to reduce late kidney allograft rejection: A Quality Improvement Study. American Journal of Kidney Diseases, 79(3), 335–346. https://doi.org/10.1053/j.ajkd.2021.06.021
“Reflecting on patient-generated photographs of the pediatric renal transplant experience” was published in May 2021 in Pediatric Transplantation.
Pollack, A. H., & Snyder, J. (2021). Reflecting on patient-generated photographs of the pediatric renal transplant experience. Pediatric transplantation, 25(3), e13896. https://doi.org/10.1111/petr.13896
“COVID‐19 in pediatric kidney transplantation: The Improving Renal Outcomes Collaborative” was published in January 2021 in the American Journal of Transplantation.
Varnell, C., Harshman, L. A., Smith, L., Liu, C., Chen, S., Al‐Akash, S., Barletta, G. M., Belsha, C., Brakeman, P., Chaudhuri, A., Fadakar, P., Garro, R., Gluck, C., Goebel, J., Kershaw, D., Matossian, D., Nailescu, C., Patel, H. P., Pruette, C., … Seifert, M. (2021). Covid‐19 in pediatric kidney transplantation: The Improving Renal Outcomes Collaborative. American Journal of Transplantation, 21(8), 2740–2748. https://doi.org/10.1111/ajt.16501
“Multicenter Data to Improve Health for Pediatric Renal Transplant Recipients in North America: Complementary Approaches of NAPRTCS and IROC” was published in September 2020 in Pediatric Transplantation.
Hooper, D. K., Misurac, J., Blydt‐Hansen, T., & Chua, A. N. (2020). Multicenter data to improve health for pediatric renal transplant recipients in North America: Complementary approaches of NAPRTCS and IROC. Pediatric Transplantation, 25(1). https://doi.org/10.1111/petr.13891
"The Improving Renal Outcomes Collaborative: Blood Pressure Measurement in Transplant Recipients" was published in July 2020 in Pediatrics: Official Journal of the American Academy of Pediatrics.
Seifert, M. E., Dahale, D. S., Kamel, M., Winterberg, P. D., Barletta, G.-M., Belsha, C. W., Chaudhuri, A., Flynn, J. T., Garro, R., George, R. P., Goebel, J. W., Kershaw, D. B., Matossian, D., Misurac, J., Nailescu, C., Nguyen, C. R., Pearl, M., Pollack, A., Pruette, C. S., … Hooper, D. K. (2020). The improving renal outcomes collaborative: Blood Pressure Measurement in transplant recipients. Pediatrics, 146(1). https://doi.org/10.1542/peds.2019-2833
“Quality Initiatives in Pediatric Transplantation” was published in February 2019 in Current Opinion in Organ Transplantation.
Kelly, B., Squires, J. E., Feingold, B., Hooper, D. K., & Mazariegos, G. V. (2019). Quality Initiatives in Pediatric Transplantation. Current Opinion in Organ Transplantation, 24(1), 64–72. https://doi.org/10.1097/mot.0000000000000595
“Using a network organisational architecture to support the development of Learning Healthcare Systems” was published in 2018 in BMJ Journals.
Britto, M. T., Fuller, S. C., Kaplan, H. C., Kotagal, U., Lannon, C., Margolis, P. A., Muething, S. E., Schoettker, P. J., & Seid, M. (2018). Using a network organisational architecture to support the development of Learning Healthcare Systems. BMJ Quality & Safety, 27(11), 937–946. https://doi.org/10.1136/bmjqs-2017-007219