Based on a model developed and refined through the launch of several successful chronic care networks, IROC completed a 12-month planning and design phase that ended in the summer of 2016. An expert team worked with fifteen committed kidney transplant programs across the country to guide patients, families, clinicians, and researchers in developing a charter, designing an idealized network-based learning health system, performing a gap analysis of information technology and quality improvement capability, defining key process and outcome measures, and developing a set of tools, trainings, and strategies that can be used to improve care. IROC officially launched in the fall of 2016, and has been enrolling patients since 2017.

Click here to view IROC's 2017 Annual Report

IROC registry goes live!

The IROC registry is alive and kicking! In April 2017, the registry went live. The registry requires patients to be enrolled first and subsequently relevant information about patients' visits and status can be entered and updated. The power of the registry comes alive when population management reports are generated based upon the data entered, enabling care centers to play an active role in managing care in a co-production based care model that IROC aspires to build and execute. As soon as centers obtain IRB and BUA approvals, their personnel receive appropriate training and are enabled with login credentials to start entering data.

Sample dummy patient example showing a list of registry forms in the demo environemnt

Sample dummy patient example showing a list of registry forms in the demo environemnt

We Grew

25 centers, 229 members, including 47 parents and patients actively involved in a Community Engagement group with the goal to include families’ voices in the redesign of the kidney transplant care system.


Design Phase Completed

10 personas were identified from interviews at Boston Children’s,  Seattle Children’s, Cincinnati Children’s and Colorado Children’s with:

  • Families

  • Physicians, including surgeons

  • Nurses and other staff including nutritionists

  • Transplant coordinators

  • Social workers



Ideas, Prototypes, Outcome and Process Measures Defined

  • 1,455 ideas generated to transform care

    • 10 prototypes (intervention packages) identified

    • Completed Design Report summarizing the key achievements of the Design Phase

  • Developed the intervention packages report showing the innovative ideas that were discussed at the Design Meetings and need prototyping

  • Outcome measures and process measures identified

  • Operational definitions for measures established

  • Key Driver Diagrams created at the network, practice, and outcome levels.

  • Assessment of chronic illness care (ACIC) survey of centers completed with all centers participation

  • Network Level blood pressure measurement clinical pathway developed, case report forms finalized, and in test mode

  • All centers enrolled in QI Fundamentals Training and engaged in improving blood pressure measurement