Based on a model developed and refined through the launch of several successful chronic care networks, IROC completed a 12-month planning and design phase that ended in the summer of 2016. An expert team worked with fifteen committed kidney transplant programs across the country to guide patients, families, clinicians, and researchers in developing a charter, designing an idealized network-based learning health system, performing a gap analysis of information technology and quality improvement capability, defining key process and outcome measures, and developing a set of tools, trainings, and strategies that can be used to improve care. IROC officially launched in the fall of 2016, and has been enrolling patients since 2017.
26 of the leading Kidney Transplant Programs in the United States participated in 2018
46% of children to receive a kidney transplant in 2018 were transplanted at an IROC Center
26 centers, 229 members, including 47 parents and patients actively involved in a Community Engagement group with the goal to include families’ voices in the redesign of the kidney transplant care system.
IMPACT / IMPROVEMENT RESULTS
Patients at IROC Centers have blood pressure measured and documented according to evidence-based guidelines great-er than 85% of the time (compared to less than 10% prior to joining IROC).
88% of patients at IROC Centers have controlled Systolic Blood Pressure compared to 76% in the published literature.
More than 2,000 registered patients with 8,487 visits entered into the registry
Electronic Data Transfer of enrollment and transplant information from UNOS (saves an average of 50 minutes per patient)
Electronic Data Transfer of laboratory results from the electronic health record starting Spring 2019
2 Platforms and 5 Poster Presentations from 4 different institutions at the American Society of Nephrology Renal Week annual meeting 2018 (with all different authors)
2 Platforms and 2 Posters accepted to international meetings in 2019
2 Grant Funded Research Projects
QUALITY IMPROVEMENT TRAINING
22 centers completed Quality Improvement Fundamentals training
Semi-annual in-person Learning Sessions
Monthly Action Period conference calls to foster collaboration and accelerate improvement