IROC’s mission is to partner with patients with kidney disease and their caregivers to achieve health, longevity and quality of life equivalent to the general population. To start, IROC committed to improving blood pressure control within this group. As part of an ongoing conversation, our community members reflect on blood pressure control and how it impacts their family.
Father to Transplant Recipient
My daughter’s kidney disease comes along with high blood pressure. Even post-transplant, she had high blood pressure. We had two adverse events prior to and immediately post-transplant, but none since. Fortunately, medication (amlodipine) has been controlling her blood pressure quite well. We've adjusted dosage for weight as she's grown. A few years ago, we added a second bp medication (valsartan) that has added benefits to kidney health.
We've been using the same digital bp machine with the same cuff since transplant (6 years now). Her bp is normally in the same range, so I check it every few nights or so. I manually record all the readings into excel and track her blood pressures in charts. Over the years, I have noticed an upward trend.
When she turned 8, a 24-hour bp test was added to her care. It was then we noticed that her bp was spiking overnight. We changed dosages and got her bp under control again. However, she started having higher, yet inconsistent, creatine scores. After a biopsy, many lab tests, and lots of back-and-forth conversations, we think it's the higher dosage of valsartan. We are now in the process of figuring out what dose is the correct balance.
While we talk with her nephrologist a lot about her bp scores, we haven't had a conversation about HOW we take her bp since we were given the bp machine 7-8 years ago. Listening to the bp presentation was eye-opening and I plan on talking with her nephrologist about the difference between manual and digital readings.