We knew blood pressure was important; Max had needed medication for a while pre-transplant. But post-transplant, although it is monitored in clinic with normal results, we haven’t paid much attention to its importance. That is, until the first lROC Learning Session that I attended in December 2016. The statistics shocked me to my core. After sharing the BP presentation with my husband, we became determined to figure out what we can do now to help Max avoid this probability.Read More
Community Engagement Workgroup
The Community Engagement Workgroup (CEW) of IROC advocates for patients and families facing chronic kidney disease, while driving forward IROC’s goal of achieving health, longevity, and quality of life for all kidney transplant patients.
Together we share our first-hand knowledge and experience with kidney disease and transplant with hospital clinicians. We learn and share best practices in kidney transplant care management. We also network with one another to help improve kidney care for all patients nationwide.
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IROC's Community Engagement Workgroup members collaborate on a variety of projects. Our goal is to provide resources that are useful to patients and families facing chronic kidney disease. This year we have developed a listing of available kidney scholarships. If you don't see a scholarship on our list please email us at: firstname.lastname@example.org.
The Improving Renal Outcomes Collaborative (IROC) has no affiliation with these organizations..Read More
It was an important reminder that our daughter didn't want to be different. Even though she knew which medications to take and when, it was more important to her to fit in with her friend and to just take them to get them over with.Read More