A transplant recipient reflects on rejection and how it impacts their family.Read More
Community Engagement Workgroup
The Community Engagement Workgroup (CEW) of IROC advocates for patients and families facing chronic kidney disease, while driving forward IROC’s goal of achieving health, longevity, and quality of life for all kidney transplant patients.
Together we share our first-hand knowledge and experience with kidney disease and transplant with hospital clinicians. We learn and share best practices in kidney transplant care management. We also network with one another to help improve kidney care for all patients nationwide.
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When you become a parent you know that your kids will grow up, move out and get lives of their own. When you become a parent of a chronically ill child this scenario is wildly different and so much scarier.Read More
The following information grew out of a question our members had - does anyone know of a company that makes comfortable kidney guards? We were surprised to find that there were so many options out there - from custom to off-the-shelf.Read More
IROC's Community Engagement Workgroup members collaborate on a variety of projects. Our goal is to provide resources that are useful to patients and families facing chronic kidney disease. This year we have developed a listing of available kidney scholarships. If you don't see a scholarship on our list please email us at: firstname.lastname@example.org.
The Improving Renal Outcomes Collaborative (IROC) has no affiliation with these organizations..Read More
It was an important reminder that our daughter didn't want to be different. Even though she knew which medications to take and when, it was more important to her to fit in with her friend and to just take them to get them over with.Read More