IROC pledges to:

  • Support the network to achieve its goals;
     
  • Organize and present monthly conference calls and semi-­annual learning sessions for all participating centers;
     
  • Coach centers in applying a systems framework to patient care, including systematically implementing and evaluating changes in care;
     
  • Develop and implement a structured QI framework for testing changes in care delivery across all participating centers;
     
  • Provide evidence‐based information on kidney transplant care and tools, forms and other aids to help with implementation of changes;
     
  • Coordinate communication across all centers to provide participants with analyses regarding effectiveness of changes and work of their colleagues;
     
  • Develop measures for tracking network performance and a repository of interventions for application and testing;
     
  • Provide secure, HIPAA‐compliant data management, including electronic data entry, data storage and data analysis;
     
  • Work with centers to develop systems of efficient data capture with the goal to achieve “data‐in‐once” automated upload of clinical data into the IROC registry;
     
  • Partner with existing networks in pediatric nephrology to complement their missions, in part by developing efficient capture and sharing of clinical data;
     
  • Partner with patients and families to understand and integrate their perspective; 
     
  • Facilitate comparative effectiveness across centers and the network;
     
  • Work with care centers to create effective and equitable access to data to advance knowledge regarding care and outcomes for children with kidney disease.

Each participating center agrees to:

  • Obtain the support of the administrative leadership at their center to enable full participation in IROC activities;
     
  • Provide resources and support to the center team, including time to devote to implementing changes;
     
  • Have a functioning QI team comprised of providers, nurses and other staff members who actively conduct IROC activities including support for the physician leader to organize, lead and advocate for improvement efforts at the center;
     
  • Enter relevant clinical data about all kidney transplant patients receiving care at their center into the IROC registry;
     
  • Provide access to local IT support to configure their EHR to support automatic upload of clinical data (est. 20 - 40 hours);
     
  • Enable team members, including the physician leader, to attend monthly webinars and all learning sessions, providing support for pre-work activities,  travel and accommodations;
     
  • Link the goals of the IROC network to the goals of their center;
     
  • Implement changes in one or more target areas of kidney transplant care;
     
  • Communicate in a timely fashion, including electronically, with IROC network organizers;
     
  • Participate in formal onboarding, including joining, training, registration and activation;
     
  • Participate in conference calls, webinars and listserv activities to communicate, share and learn with other centers;
     
  • Make defined measurements at least monthly, and share the results with IROC and other participating centers;
     
  • Contribute annual participation fee.

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